{"id":81,"date":"2019-09-05T19:41:34","date_gmt":"2019-09-05T19:41:34","guid":{"rendered":"https:\/\/test.donewithdiabetes.org\/?page_id=81"},"modified":"2022-03-25T16:04:57","modified_gmt":"2022-03-25T16:04:57","slug":"done-with-diabetes-story","status":"publish","type":"page","link":"https:\/\/test.donewithdiabetes.org\/index.php\/done-with-diabetes-story\/","title":{"rendered":"Our Story"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;About Us&#8221; _builder_version=&#8221;3.25.3&#8243; background_color=&#8221;#F0F8FF&#8221; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px&#8221; custom_width_px__hover=&#8221;1080px&#8221; custom_width_px__hover_enabled=&#8221;1080px&#8221; custom_width_percent__hover=&#8221;80%&#8221; custom_width_percent__hover_enabled=&#8221;80%&#8221; collapsed=&#8221;off&#8221; make_fullwidth__hover=&#8221;off&#8221; make_fullwidth__hover_enabled=&#8221;off&#8221; use_custom_width__hover=&#8221;off&#8221; 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portrait_url=&#8221;data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iNTAwIiBoZWlnaHQ9IjUwMCIgdmlld0JveD0iMCAwIDUwMCA1MDAiIHhtbG5zPSJodHRwOi8vd3d3LnczLm9yZy8yMDAwL3N2ZyI+CiAgICA8ZyBmaWxsPSJub25lIiBmaWxsLXJ1bGU9ImV2ZW5vZGQiPgogICAgICAgIDxwYXRoIGZpbGw9IiNFQkVCRUIiIGQ9Ik0wIDBoNTAwdjUwMEgweiIvPgogICAgICAgIDxyZWN0IGZpbGwtb3BhY2l0eT0iLjEiIGZpbGw9IiMwMDAiIHg9IjY4IiB5PSIzMDUiIHdpZHRoPSIzNjQiIGhlaWdodD0iNTY4IiByeD0iMTgyIi8+CiAgICAgICAgPGNpcmNsZSBmaWxsLW9wYWNpdHk9Ii4xIiBmaWxsPSIjMDAwIiBjeD0iMjQ5IiBjeT0iMTcyIiByPSIxMDAiLz4KICAgIDwvZz4KPC9zdmc+Cg==&#8221; quote_icon_color=&#8221;#0014A8&#8243; quote_icon_background_color=&#8221;#ffffff&#8221; portrait_width=&#8221;1px&#8221; portrait_height=&#8221;1px&#8221; _builder_version=&#8221;3.25.3&#8243; body_font=&#8221;Arial||on||||||&#8221; author_text_color=&#8221;#0014A8&#8243; position_font=&#8221;||||||||&#8221; background_color=&#8221;#F0F8FF&#8221; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px|&#8221; box_shadow_style=&#8221;preset2&#8243; inline_fonts=&#8221;Arial&#8221;]<\/p>\n<h4 data-ux=\"WelcomeContentHeading\" data-aid=\"CONTENT_WELCOME_TITLE_RENDERED\" data-route=\"welcomeTitle\" class=\"x-el x-el-h4 c1-1r c1-1s c1-2b c1-63 c1-1t c1-8i c1-22 c1-2d c1-14 c1-16 c1-1x c1-2e c1-2f x-d-ux x-d-aid x-d-route\" style=\"text-align: center;\"><span style=\"color: #000000;\">Susie Perkowitz has an incredible message that must be heard by everyone.<\/span><\/h4>\n<div data-ux=\"WelcomeContentText\" data-aid=\"CONTENT_WELCOME_DESCRIPTION_RENDERED\" data-route=\"welcomeDescription\" class=\"x-el x-el-p c1-1r c1-1s c1-8t c1-a c1-1t c1-5u c1-14 c1-16 c1-1x c1-7n c1-7o c1-7p c1-7q c1-7r c1-7s c1-7t c1-7u c1-7v c1-7w c1-7x c1-7y c1-7z c1-80 c1-81 c1-82 c1-83 c1-84 c1-85 c1-86 c1-87 c1-88 c1-89 c1-8a c1-8b c1-8c c1-8d c1-8e c1-b c1-c x-d-ux x-d-aid x-d-route x-rt\">\n<p><span style=\"font-family: Arial;\"><span class=\"x-el x-el-span c1-5z c1-1x c1-60 x-d-ux\">Diabetes is a condition that touches so many of our families and Susie and her \u201cfearless\u201d approach will make you sit up a little taller in your seat and want to become a part of a movement that must take place.\u00a0<\/span><span class=\"x-el x-el-span c1-5z c1-1x c1-60 x-d-ux\">Her passion and fighting mentality are inspiring!<\/span><\/span><\/p>\n<\/div>\n<p>[\/et_pb_testimonial][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; 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width_unit__hover=&#8221;on&#8221; width_unit__hover_enabled=&#8221;on&#8221; use_custom_gutter__hover=&#8221;off&#8221; use_custom_gutter__hover_enabled=&#8221;off&#8221; gutter_width__hover=&#8221;3&#8243; gutter_width__hover_enabled=&#8221;3&#8243; make_equal__hover=&#8221;off&#8221; make_equal__hover_enabled=&#8221;off&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;3.27.4&#8243; header_font=&#8221;Arial|700|||||||&#8221; header_text_align=&#8221;center&#8221; header_font_size=&#8221;50px&#8221; custom_margin=&#8221;10px||0px&#8221; custom_padding=&#8221;0px||0px|||&#8221;]<\/p>\n<h1>Our Story<\/h1>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/test.donewithdiabetes.org\/wp-content\/uploads\/2019\/09\/Susie-TransRockies-Finish-Compressed-1.jpg&#8221; _builder_version=&#8221;3.25.3&#8243; width=&#8221;60%&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px&#8221; border_width_all=&#8221;5px&#8221; border_color_all=&#8221;#0014A8&#8243; box_shadow_style=&#8221;preset2&#8243;][\/et_pb_image][et_pb_text _builder_version=&#8221;3.27.4&#8243; text_font=&#8221;||||||||&#8221; text_font_size=&#8221;12px&#8221; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px|||&#8221;]<\/p>\n<p style=\"text-align: center;\"><em>Susie at the TransRockies Ultramarathon prior to her diagnosis\u00a0<\/em><\/p>\n<p>[\/et_pb_text][et_pb_testimonial author=&#8221;Susie Perkowitz&#8221; job_title=&#8221;Founder &#038; President&#8221; company_name=&#8221;Done with Diabetes&#8221; portrait_url=&#8221;https:\/\/test.donewithdiabetes.org\/wp-content\/uploads\/2019\/09\/Susie-Perkowitz-Cropped.jpg&#8221; quote_icon_color=&#8221;#0014A8&#8243; quote_icon_background_color=&#8221;#ffffff&#8221; quote_icon_background_color_last_edited=&#8221;off|desktop&#8221; _builder_version=&#8221;3.25.3&#8243; body_font=&#8221;Arial||||||||&#8221; author_font=&#8221;Arial|700|||||||&#8221; author_text_color=&#8221;#0014A8&#8243; position_font=&#8221;Arial||||||||&#8221; company_font=&#8221;||||||||&#8221; background_color=&#8221;#F0F8FF&#8221; custom_margin=&#8221;30px|0px|0px|10px&#8221; custom_margin_tablet=&#8221;&#8221; custom_margin_phone=&#8221;&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||&#8221; box_shadow_style=&#8221;preset3&#8243;]<\/p>\n<p><em>&#8220;I passionately believe we have the ability to cure diabetes if we fund the researchers who are doing the brilliant work to move the needle towards that goal.&#8221;<\/em><\/p>\n<p>[\/et_pb_testimonial][et_pb_image src=&#8221;https:\/\/test.donewithdiabetes.org\/wp-content\/uploads\/2019\/09\/Susie-Speaks-at-ADA-2018-Cropped.jpg&#8221; _builder_version=&#8221;3.25.3&#8243; width=&#8221;55%&#8221; width_tablet=&#8221;&#8221; width_phone=&#8221;&#8221; width_last_edited=&#8221;on|phone&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;5px|0px|0px|0px&#8221; custom_padding=&#8221;30px|||12px&#8221; border_radii=&#8221;on|2px|2px|2px|2px&#8221; border_width_all=&#8221;5px&#8221; border_color_all=&#8221;#0014A8&#8243; box_shadow_style=&#8221;preset2&#8243; box_shadow_color=&#8221;#b3b3b3&#8243;][\/et_pb_image][et_pb_text _builder_version=&#8221;3.27.4&#8243; text_font=&#8221;||||||||&#8221; text_font_size=&#8221;12px&#8221; text_orientation=&#8221;center&#8221; text_text_align=&#8221;center&#8221;]<\/p>\n<p style=\"text-align: center;\"><em>Susie speaking at the ADA 2018 conference<\/em><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding_tablet=&#8221;|||||true&#8221; custom_padding_last_edited=&#8221;off|desktop&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;3.27.4&#8243; text_font=&#8221;||||||||&#8221; text_line_height=&#8221;2em&#8221; header_font=&#8221;||||||||&#8221; header_3_font=&#8221;Faustina|600|||||||&#8221; header_3_text_color=&#8221;#0e7162&#8243; header_3_font_size=&#8221;26px&#8221; header_3_line_height=&#8221;1.2em&#8221; max_width=&#8221;600px&#8221; custom_padding=&#8221;1px|||||&#8221; header_3_font_size_tablet=&#8221;22px&#8221; header_3_font_size_phone=&#8221;18px&#8221; header_3_font_size_last_edited=&#8221;on|tablet&#8221; locked=&#8221;off&#8221; inline_fonts=&#8221;Arial&#8221; header_2_font_size__hover=&#8221;26px&#8221; header_2_font_size__hover_enabled=&#8221;26px&#8221; header_2_letter_spacing__hover=&#8221;0px&#8221; header_2_letter_spacing__hover_enabled=&#8221;0px&#8221; header_2_line_height__hover=&#8221;1em&#8221; header_2_line_height__hover_enabled=&#8221;1em&#8221; header_2_text_shadow_style__hover=&#8221;none&#8221; header_2_text_shadow_style__hover_enabled=&#8221;none&#8221; header_2_text_shadow_color__hover=&#8221;rgba(0,0,0,0.4)&#8221; header_2_text_shadow_color__hover_enabled=&#8221;rgba(0,0,0,0.4)&#8221;]<\/p>\n<blockquote>\n<p><strong><span style=\"font-size: 14px;\">\u00a0<\/span>\u00a0 \u00a0Hi! I\u2019m Susie. In 2013, as I was running a 120-mile ultramarathon, I started experiencing strange symptoms.\u00a0<span>I completed the race \u2013 but afterward I felt so sick I went straight to the ER to make <\/span>sure I didn\u2019t have a pulmonary embolism.\u00a0 To everyone\u2019s surprise, it was discovered that I had diabetes.<\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong>At first it was suspected I had Type 1.\u00a0 When I tested negative for autoimmune antibodies (a key marker for Type 1), it was assumed I had Type 2 and I began treatment.\u00a0 At the same time, I was diagnosed with mild-moderate diabetic retinopathy.<\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong>Treatment for Type 2 diabetes made me very sick and I simply didn\u2019t respond to the treatment.\u00a0<\/strong><strong>By 2016, my diabetes was out of control and my eye disease had progressed to severe diabetic retinopathy with macular edema.\u00a0 I was going blind, and it was irreversible and unstoppable.\u00a0 It was a very scary low point.<\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong>Luckily, my medical system had begun a new program in personalized medicine, and I was referred to an endocrinologist who specialized in atypical diabetes.\u00a0 She took my history, and said I met the criteria for testing for MODY, a kind of monogenic diabetes. Bloodwork confirmed her instincts and the final step was genetic testing.\u00a0 Within weeks, I finally had the correct diagnosis: HNF4a MODY1 Monogenic Diabetes.<\/strong><\/p>\n<p><strong style=\"font-family: Arial;\"><\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong style=\"font-family: Arial;\">It was a life-changing moment!\u00a0 With the correct diagnosis, I finally got the right treatment. And all it took was a doctor who knew the right questions to ask and the right bloodwork to order.<\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong>Since then, I\u2019ve become a passionate diabetes advocate.\u00a0 In 2018, I spoke at the American Diabetes Association\u2019s Scientific sessions. Now I\u2019ve founded Done with Diabetes, a not-for-profit with the primary goal of raising funding for diabetes research.\u00a0 Another goal is to educate, so that nobody else has to face blindness like I am, simply because they were misdiagnosed. You can read more about our Mission <a href=\"https:\/\/test.donewithdiabetes.org\/index.php\/mission\/\">here<\/a>.<\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong>Diabetes is an insidious disease that impacts all of us.\u00a0 I passionately believe we have the ability to cure diabetes if we fund the researchers who are doing the brilliant work to move the needle towards that goal.<\/strong><\/p>\n<\/blockquote>\n<blockquote>\n<p><strong>\u00a0I cannot do this alone. You can make a difference.\u00a0 Please <a href=\"https:\/\/www.classy.org\/give\/247686\/#!\/donation\/checkout\">donate today<\/a>, so we can be Done with Diabetes as soon as possible. Thank you!<\/strong><\/p>\n<\/blockquote>\n<p style=\"text-align: center;\"><em><b>Susie Perkowitz<\/b><\/em><\/p>\n<blockquote>\n<p><strong><\/strong><\/p>\n<\/blockquote>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.25.3&#8243; background_color=&#8221;#F0F8FF&#8221; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px|||&#8221;][et_pb_row _builder_version=&#8221;3.25.3&#8243; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.25.3&#8243;][et_pb_image src=&#8221;https:\/\/test.donewithdiabetes.org\/wp-content\/uploads\/2019\/09\/DWD-Facebook-Page-Our-Story-Image-Transparent-1.png&#8221; _builder_version=&#8221;3.25.3&#8243; background_color=&#8221;#F0F8FF&#8221; width=&#8221;80%&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;0px||0px&#8221; custom_padding=&#8221;0px||0px&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; 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